Clinical Trials & More

These last few weeks have been full of doctor visits to see what clinical trials are out there for me. We have found three BUT the time is not right to stop doing what is working and go to a clinical trial. Deciding on when to move to the clinical trial is the most challenging task. You don’t want to stop doing something that is working such as my current chemo treatment but you need to be mindful of when you can get into the trial. So as we continue on this course we are being mindful as to when we can get into the trial! One get thing about the trial is that I will be off chemo for 4 weeks – what an awesome break for my body! Dr Reza says we have to stay nimble with this and respond as quickly as needed – it reminds me of what my grandmother said to me which was always be flexible…bend like the willow.

What an extra special treat steve planned for our visit to UNC and we stayed at The Umstead and had a fabulous spa afternoon and little overnight in Cary.

The best was when we got to the waiting room at UNC and there was a puzzle for those waiting to enjoy. I thought this was a brilliant way to take you mind off why you were there. As you can see Steve jumped right in on that puzzle. What a relaxing two days of spa treatments and steam baths and nature walks and puzzles – a perfect two days!

A few weeks later we had a wonderful visit with Tish and Tess came up for one night. There is nothing like childhood friends and a double treat is to be friends with their children too.

My heart is so full of joy with all the love that is showered on me. Wednesday my sissy worked from here and helped me to organize and put away laundry and kept a close eye on me during the day. Then the next day Steve stayed home and watched over me. My little body is being beaten up from this chemo and I need a break! I hate this for me and I wish this on NO ONE. I feel like I have been hit by a bus, I am not sure exactly how that feels but I am guessing it feels like someone pounded on you till you can’t move. I just wish I had some way to be less lethargic and had better energy. And you know me I have a ton of energy so not having it makes me sad on top of everything. I am trying to turn the sadness into joy cause as my mom says chemo is what will make you better and is your friend.

Another exciting adventure is we got out with beth for her birthday dinner 2 months late but it was nice to get out and celebrate her. She has been such a rock for me during this time. God brought her to Charlotte for a reason. Our new couch also arrived and Dawn and John came by for drinks to break it. A wonderful evening full of lots of laughter and joy!

Spent 5 days at my Mom’s who took really good care of me and watched over me. I know this is hard for my Mom and I do my best to keep her positive and smiling. This is really tough for her which I hate.

I will post again sooner this time as I am thinking it may be time for plan B and clinical trials to start. Thanks to all that have supported and loved on me and Steve, we could not do this without all of you!